Courage

Living With Limitations

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What I’ve learned from my Grandfathers since they died

Last week, I wrote about my strategy for a healthy old age and how I learned it from my Grandfather Talbott.

You may have read about how I built myself up so that I could run 3 miles without stopping, and said, “How nice for you. Not everyone gets to have a healthy old age.”

Frankly, I’m not sure I will have one either.

I did the running to recover from a strange illness. In December 2019, I had fever, cough, congestion, fatigue, and brain fog. Sounds a lot like COVID-19. But, I had it a month before the WHO even knew there was an outbreak in Wuhan. I was tested for antibodies six months after I had it. None showed up. Not unusual for COVID patients, but it means I can’t prove that I had it.

In January 2019, I was diagnosed with Chronic Obstructive Pulmonary Disorder. Life-long smokers get COPD. Now it is showing up in people who had COVID 19. I never smoked.

That is why I began walking and running last spring — to build lung capacity.

But, beginning in late November and continuing right up to today, I have spent most of my waking hours lying in bed with fatigue and brain fog. The brain fog has lifted, or I would not be writing this. But the fatigue continues. 

My “push the broom” solution isn’t working either. I’ve done enough exercising to know what being tired feels like. It is not the same as  feeling nauseous, having a headache, and wanting to fall asleep after walking around the block.

The Cleveland Clinic calls this “reduced exercise tolerance.”

This, too, is a symptom of “Long Covid,” officially: Post-Acute Sequelae of SARS-CoV-2 infection (PASC). (I have a theory that Medicine creates the most highbrow names for the stuff it knows the least about.) No one knows how long the disease lasts. Will it get better? Or worse? How will it affect my COPD and a couple of other things that I have wrong with me that require lots of exercise? Will I die of this?

All this uncertainty makes me remember my other grandfather — Grandpa Flint.

When he was in his 50’s, he had a stroke.

In his 60’s, he went blind.

In his 70’s, he spent years battling cancer, and ultimately lost the battle.

This is what I remember:

When he had the stroke, he did the hard work of learning to speak and walk again. He had to quit his job, but he started a business. He stocked a small lake he owned with trout, then charged a dollar for each one that fishermen caught. He was able to continue that business even after he could no longer see to drive or read.

Because he was legally blind he was able to get books and magazines recorded on phonograph records. He used to say that he read more after going blind than he did when he could see. He also bought a juicer. He made carrot juice everyday because he heard it was good for the eyes. When he mentioned it to his ophthalmologist, the doctor said, “Well, I never saw a rabbit wearing glasses.”

One day, he asked a fisherman, a doctor, to look at a mole on the back of his neck. The doctor told him it was cancer. That was the beginning of an almost two-decade up-and-down experience of dealing with cancer in different organs. At the end, it invaded his bones.

He decided against chemotherapy. I thought he was crazy. Looking back, I can see that, in the 70’s, chemotherapy was both agonizing and not very effective. He might have lived a few more weeks or months, but his quality of life would have been worse.

As it was, he was in a lot of pain. There was no such thing as hospice or palliative medicine in those days. Politicians believed they had to limit pain-killers to protect dying people from becoming drug addicts.

I used to visit him in his last months. I was struck by the change in his personality.

All his life, he was a big personality who liked being the center of attention. His stories always sounded better than the actual experiences probably were. His marriage to my grandmother was sometimes tense. He was an extrovert married to an introvert. He was the guy with big ideas married to someone who, my mother said, “could always see the hole in the donut.” They were opposites: just like every other couple I know.

In the end, he bore his pain with grace. He told me that he had never loved or appreciated my grandmother more. His faith in God was his source of strength when his body failed him. In the midst of his pain, he saw goodness all around him.

My cousin, Dawn, who grew up within walking distance of our grandparents  knew them far better than I did. She suggests that those good qualities were there all along. They were covered up by the boasting, gregarious personality that he presented to the world.

But, isn’t that true of all of us? Isn’t our basic goodness encased in a shell of bad habits, defensiveness, and need for approval? And doesn’t it usually take suffering in some form to crack that shell?

As my teacher and friend, Laura Atmadarshan Santoro says:

“No one ever said at the end of a good meal surrounded by loving friends, ‘I need to make  changes. My life needs to take a new direction!’ It is only when we are hurting that we change.”

I hope I will start feeling better as Spring arrives and the pandemic restrictions finally lift as we all get vaccinated. I want to get back to walking and running and working out again. I’d like to go on to a healthy old age, like my Grandfather Talbott. I like the slogan: “Live long and die short.”

But, this period of repetitive, long-term illness has caused me to look at my Grandfather Flint for guidance, too. I can learn to:

  • Listen to my body and support my health with nutritious food and as much exercise as my body will bear.
  • Learn to make plans with the proviso that I might not be able to carry them out.
  • Love everyone around me.
  • Write some things that I hope other people will read.
  • Pray for the world, especially for those who suffer.
  • Appreciate and enjoy every day as much as I can.

When I compare this time in my life with my Grandfather’s last few months, I would hardly call my experience “suffering.” In fact, my life is so leisurely and stress-free that I fear I will become like one of Jacquie’s great-aunts. My mother-in-law always described her as “someone who enjoyed poor health.”

Nevertheless, I understand better something the Bible says:

We also rejoice in sufferings, knowing that suffering produces endurance,  and endurance, character, and character, hope. And hope does not disappoint, because the love of God  has been poured out in our hearts through the Holy Spirit who was given to us.

Romans 5:3-5 New English Translation.

It’s Good to Suck at Things 2: When We Suck At What We Were Once Good At

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“We fall down and we get up.

We fall down and we get up.

We fall down . . . and we. . . . get. . . .up!”

You may remember this song, “We fall down,”* sung by Bob Carlisle,  but even if you don’t, the refrain is all you need for background music while reading  this post.

One of the realities of this Third Half of Life is that we fall down; sometimes literally.

I fell not long ago walking across a parking lot after dinner with my sister and brother-in-law. As we got to their car, I did not see that I was stepping off a curb. I went down. I didn’t hurt anything but my dignity, but my cochlear implant processor and my glasses went flying.

I have difficulty with depth perception in low-light conditions. I was a little off-balance because of a bout with vertigo a couple of weeks earlier. Probably the Guinness I drank with dinner did not help. I fell down, but I got up.

So, there you have my organ recital. I can’t see, hear, or walk as well as I used to. I suck at things I used to be good at. This happens to all of us if we live long enough.

When it happens, we have three choices:

Denial

Despair

Defiance

Denial The best way to deny that you have a problem is to blame it on someone else. Have you ever said something like this?

“Everybody just mumbles these days. Even the ones on TV.”

“They keep shrinking the print on everything.”

“Why doesn’t the city fix the sidewalks? They are a menace.”

“All these young doctors ever talk about is losing weight. I want them to give me pills, not a sermon.”

Ironically, we most likely go into denial because we are afraid that reading glasses or hearing aids will make us look like old coots. Yet, when we talk like this we sound like old coots.

Denial can be kind of funny – until it kills us or someone else. Think about Prince Philip’s recent accident. He was lucky he did not hurt anyone.

Despair

Despair is never funny.

Despair is often accompanied by depression — another thing we tend to deny.

Despair is a decision to stay down after we fall down and not get up again. When it becomes clear that what we are eating and drinking is killing us, or at least limiting our ability to tie our shoes, we choose to believe that we cannot change. Instead we put on the slip-on shoes and find pants with an elastic waist. We accept that there is a whole list of things we cannot do anymore. We spend thousands of dollars on medications. More tragically, we become more and more isolated and lonely as we lose our eyesight, our hearing, and our mobility.

Yes, we may have to learn to live with some limitations. However, most conditions can be improved with some help and some effort. Sadly, when we start to suck at things we used to be good at, too many of us just despair. We fall down and don’t get up.

Defiance

Defiance is different from denial in that it begins with admitting that we now suck at what we used to be good at. Defiance means facing what is changing in our bodies.  It is different from despair in that it means learning what our alternatives are. It means doing the hard work of getting up after we have fallen down.

One of my heroes is  a friend who was diagnosed with Parkinson’s. He not only goes to physical therapy, but does the exercises his PT prescribes.

Another is a physician and social activist who, in his 80’s, began to lose his ability to speak clearly. He goes to a speech therapist and then carefully speaks in a way the rest of us can understand.

Another hero is a woman who decided when she was 60 years old that if she did not lose weight, she wouldn’t make it to 70. She has lost more than 70 pounds and is still learning how to change her eating and exercise habits to get healthier. Since I’m married to her, I am much healthier, too. By the way, she just turned 70, but does not look like it.

That’s what defiance looks like from the outside looking in.

Here’s what it feels like on the inside.

Last Thanksgiving, my 13-year-old granddaughter sang a song for our family gathering. It was an Italian art song she sang to audition for a place in a performing arts high school. In the unbiased opinions of three of her grandparents, she was startlingly good.

The fourth grandparent had no idea. Through my sound processors it sounded like someone singing on a telephone. I know that some people who wear cochlear implants hear music in all of its richness. Most of them are musicians whose brains already know how to hear music. I am not a musician. I despaired that I would ever hear music again. I also denied that I wanted to. My cochlear implants helped me to hear and understand speech remarkably well. I told myself that was good enough. That day, however, I decided that I want to hear my granddaughter sing. I want to hear her brother play the viola that he is starting to learn.

I now have an app for people like me. Several times each week, I play games that reward me for choosing the lowest note from five options. It also gives me points when I determine whether a two-note sequence goes up or down. I was able to do that after “graduating” from a series of exercises that helped me hear the difference between a trumpet and a piano. Yes, my hearing was that bad.  Now I am moving on to listening to 60’s music on Spotify. It helps if the songs are already stored in my brain.

All this takes time, effort, and energy. I am often mentally exhausted afterward.  Nevertheless, I can now hear Petula Clark sing “Downtown” and Glen Campbell sing “Gentle on My Mind” at least as well as I first heard them over my tiny transistor radio. Best of all, I feel like I am getting up after being knocked down.

So, what are your stories? How have you fallen down? What are you doing to get back up again?

 

* The story of the origin of this song is worth reading.