Living With Limitations

What I’ve learned from my Grandfathers since they died

Last week, I wrote about my strategy for a healthy old age and how I learned it from my Grandfather Talbott.

You may have read about how I built myself up so that I could run 3 miles without stopping, and said, “How nice for you. Not everyone gets to have a healthy old age.”

Frankly, I’m not sure I will have one either.

I did the running to recover from a strange illness. In December 2019, I had fever, cough, congestion, fatigue, and brain fog. Sounds a lot like COVID-19. But, I had it a month before the WHO even knew there was an outbreak in Wuhan. I was tested for antibodies six months after I had it. None showed up. Not unusual for COVID patients, but it means I can’t prove that I had it.

In January 2019, I was diagnosed with Chronic Obstructive Pulmonary Disorder. Life-long smokers get COPD. Now it is showing up in people who had COVID 19. I never smoked.

That is why I began walking and running last spring — to build lung capacity.

But, beginning in late November and continuing right up to today, I have spent most of my waking hours lying in bed with fatigue and brain fog. The brain fog has lifted, or I would not be writing this. But the fatigue continues. 

My “push the broom” solution isn’t working either. I’ve done enough exercising to know what being tired feels like. It is not the same as  feeling nauseous, having a headache, and wanting to fall asleep after walking around the block.

The Cleveland Clinic calls this “reduced exercise tolerance.”

This, too, is a symptom of “Long Covid,” officially: Post-Acute Sequelae of SARS-CoV-2 infection (PASC). (I have a theory that Medicine creates the most highbrow names for the stuff it knows the least about.) No one knows how long the disease lasts. Will it get better? Or worse? How will it affect my COPD and a couple of other things that I have wrong with me that require lots of exercise? Will I die of this?

All this uncertainty makes me remember my other grandfather — Grandpa Flint.

When he was in his 50’s, he had a stroke.

In his 60’s, he went blind.

In his 70’s, he spent years battling cancer, and ultimately lost the battle.

This is what I remember:

When he had the stroke, he did the hard work of learning to speak and walk again. He had to quit his job, but he started a business. He stocked a small lake he owned with trout, then charged a dollar for each one that fishermen caught. He was able to continue that business even after he could no longer see to drive or read.

Because he was legally blind he was able to get books and magazines recorded on phonograph records. He used to say that he read more after going blind than he did when he could see. He also bought a juicer. He made carrot juice everyday because he heard it was good for the eyes. When he mentioned it to his ophthalmologist, the doctor said, “Well, I never saw a rabbit wearing glasses.”

One day, he asked a fisherman, a doctor, to look at a mole on the back of his neck. The doctor told him it was cancer. That was the beginning of an almost two-decade up-and-down experience of dealing with cancer in different organs. At the end, it invaded his bones.

He decided against chemotherapy. I thought he was crazy. Looking back, I can see that, in the 70’s, chemotherapy was both agonizing and not very effective. He might have lived a few more weeks or months, but his quality of life would have been worse.

As it was, he was in a lot of pain. There was no such thing as hospice or palliative medicine in those days. Politicians believed they had to limit pain-killers to protect dying people from becoming drug addicts.

I used to visit him in his last months. I was struck by the change in his personality.

All his life, he was a big personality who liked being the center of attention. His stories always sounded better than the actual experiences probably were. His marriage to my grandmother was sometimes tense. He was an extrovert married to an introvert. He was the guy with big ideas married to someone who, my mother said, “could always see the hole in the donut.” They were opposites: just like every other couple I know.

In the end, he bore his pain with grace. He told me that he had never loved or appreciated my grandmother more. His faith in God was his source of strength when his body failed him. In the midst of his pain, he saw goodness all around him.

My cousin, Dawn, who grew up within walking distance of our grandparents  knew them far better than I did. She suggests that those good qualities were there all along. They were covered up by the boasting, gregarious personality that he presented to the world.

But, isn’t that true of all of us? Isn’t our basic goodness encased in a shell of bad habits, defensiveness, and need for approval? And doesn’t it usually take suffering in some form to crack that shell?

As my teacher and friend, Laura Atmadarshan Santoro says:

“No one ever said at the end of a good meal surrounded by loving friends, ‘I need to make  changes. My life needs to take a new direction!’ It is only when we are hurting that we change.”

I hope I will start feeling better as Spring arrives and the pandemic restrictions finally lift as we all get vaccinated. I want to get back to walking and running and working out again. I’d like to go on to a healthy old age, like my Grandfather Talbott. I like the slogan: “Live long and die short.”

But, this period of repetitive, long-term illness has caused me to look at my Grandfather Flint for guidance, too. I can learn to:

• Listen to my body and support my health with nutritious food and as much exercise as my body will bear.
• Learn to make plans with the proviso that I might not be able to carry them out.
• Love everyone around me.
• Write some things that I hope other people will read.
• Pray for the world, especially for those who suffer.
• Appreciate and enjoy every day as much as I can.

When I compare this time in my life with my Grandfather’s last few months, I would hardly call my experience “suffering.” In fact, my life is so leisurely and stress-free that I fear I will become like one of Jacquie’s great-aunts. My mother-in-law always described her as “someone who enjoyed poor health.”

Nevertheless, I understand better something the Bible says:

We also rejoice in sufferings, knowing that suffering produces endurance,  and endurance, character, and character, hope. And hope does not disappoint, because the love of God  has been poured out in our hearts through the Holy Spirit who was given to us.

Romans 5:3-5 New English Translation.